What is Koolen-de Vries Syndrome?

Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.

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Speech & Language Study

Looking for individuals 6 months and older to participate in a speech and language research project. International project available in many languages!

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2019 Tri to be Kool Virtual Triathlon

Join us October 17 - November 17, 2019 in the virtual ``Tri to be Kool`` KDVS Triathlon. This fun event (easily customized to your abilities) reminds us how hard our Kool friends work every day while raising awareness about the syndrome!

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