KDVS Foundation Enriching lives through education, awareness and research. KDVS Foundation Enriching lives through education, awareness and research.

What is Koolen-de Vries Syndrome?

Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.

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KdVS Connect

Join us December 4, 2021 at 12 pm EST for this month's KdVS Grandparent Support Group - support and discussion for all Kool Grandparents!

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Call for Volunteers!

KdVS Foundation is run entirely by volunteers. A number of volunteer opportunities are available.

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Visit our What is KdVS page for more videos!

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