KDVS Foundation Enriching lives through education, awareness and research. KDVS Foundation Enriching lives through education, awareness and research.

What is Koolen-de Vries Syndrome?

Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.

MORE

Webinar with Dr. Bert de Vries

Coming up on June 25th at 11am EDT, don’t miss a conversation with Dr. Bert de Vries, clinical geneticist from The Netherlands, and member of the KdVS Foundation Medical Advisory Board. He will be sharing information about the current research into KdVS individuals.

REGISTER

2021 Summit - REGISTER NOW!

Due to Covid-19, this year's summit is VIRTUAL. And - it's time to register! Get signed up today!

MORE

Want to see more?

Visit our What is KdVS page for more videos!

Subscribe to our emails

Select list(s) to subscribe to


By submitting this form, you are consenting to receive marketing emails from: Koolen-de Vries Syndrome Foundation, 609A Piner Road, Wilmington, NC, 28409. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Constant Contact

OUR LATEST

KDVS NEWS

Interested in reading more KdVS News?

LEND A HAND

The generous support from our donors helps us find success. Thank you!

DONATE

CHECK OUT OUR UPCOMING EVENTS

CONTACT US

Drop Us a Line