KDVS Foundation Enriching lives through education, awareness and research. KDVS Foundation Enriching lives through education, awareness and research.

What is Koolen-de Vries Syndrome?

Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.

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KdVS Awareness Day

Mark your calendars for July 17 - Koolen-de Vries Syndrome Awareness Day!

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Kool Kampaign 2021

Join the Koolen-de Vries Syndrome Foundation in raising funds for research as part of our 2021 Kool Kampaign!

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Visit our What is KdVS page for more videos!

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