KDVS Foundation Enriching lives through education, awareness and research. KDVS Foundation Enriching lives through education, awareness and research.

What is Koolen-de Vries Syndrome?

Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.

MORE

KdVS Connect - Emotional Support Group

Join us October 10, 2021 at 8 pm EST for KdVS Connect. This month’s zoom call is an Emotional Support Group. Topics to discuss will include: What has been hardest about being a KDVS parent? How do you cope?

MORE

Kool Kampaign 2021

The Kool Kampaign was an amazing success! $150,000 was raised for Koolen-de Vries Syndrome Research!

MORE

Want to see more?

Visit our What is KdVS page for more videos!

Subscribe to our emails

Select list(s) to subscribe to


By submitting this form, you are consenting to receive marketing emails from: Koolen-de Vries Syndrome Foundation, 609A Piner Road, Wilmington, NC, 28409. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Constant Contact

OUR LATEST

KDVS NEWS

Interested in reading more KdVS News?

LEND A HAND

The generous support from our donors helps us find success. Thank you!

DONATE
CONTACT US

Drop Us a Line




    Member Organizations

    Global Genes Rare Foundation Alliance
    Guidestar Silver Seal
    The orphan disease center member
    The Jumpstart Program Member
    Rare Epilepsy Network