Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.
MOREJoin us on April 30, 2021 for a webinar with Dr. David Koolen. Check out the Event page to register!
MOREDue to Covid-19 virus, we've decided to take the Patient Advocacy Summit and go VIRTUAL this summer! More details coming soon.
MOREBy Alayna
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By Alayna
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On April 30th at 12:00 PM ET, the Koolen-de Vries Syndrome Foundation will be hosting a webinar with Dr. David Koolen. If you have a question to ask Dr. Koolen, you may submit it directly within the webinar registration page or email us at ashley@kdvsfoundation.org. We will answer questions as time allows. Registration link below! […]
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