KDVS Foundation Enriching lives through education, awareness and research. KDVS Foundation Enriching lives through education, awareness and research.

What is Koolen-de Vries Syndrome?

Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.

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Webinar with Dr. David Koolen

Join us on April 30, 2021 for a webinar with Dr. David Koolen. Check out the Event page to register!

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2021 Summit - WE'VE GONE VIRTUAL!

Due to Covid-19 virus, we've decided to take the Patient Advocacy Summit and go VIRTUAL this summer! More details coming soon.

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Want to see more?

Visit our What is KdVS page for more videos!

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