KDVS Foundation Enriching lives through education, awareness and research. KDVS Foundation Enriching lives through education, awareness and research.

What is Koolen-de Vries Syndrome?

Koolen-de Vries Syndrome is a genetic syndrome caused by a deletion on the 17th chromosome at 17q21.31 or by a mutation of the KANSL1 gene. Find out more about the syndrome.

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KdVS Connect

Join us on Zoom January 16, 2022 at 8 pm ET for an Emotional support group for KdVS parents/caregivers. What’s been the most difficult part about being a KdVS parent? How do you cope?

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Call for Volunteers!

KdVS Foundation is run entirely by volunteers. A number of volunteer opportunities are available.

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Want to see more?

Visit our What is KdVS page for more videos!

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Global Genes Rare Foundation Alliance
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Rare Epilepsy Network
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