Where We Live

Koolen-de Vries Syndrome was only identified in 2006. What started out as just a few diagnosed individuals is starting to grow into a much larger community. Zoom in on the map and maybe you'll find a family near you!

The Map

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Locations

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Fort Worth, Texas (16-16): 32.755488, -97.330766
Gold Cost, Queensland: -28.017260, 153.425699
Hopewell, VA: 37.304315, -77.287200
Manalapan, NJ (16-1): 40.283716, -74.336243
Van Wert, OH (16-2): 40.861602, -84.582367
Wellington, OH (16-3): 41.168058, -82.218590
Chattanooga, TN (16-4): 35.043490, -85.297852
Marysville, OH (16-6): 40.236426, -83.368034
Walton, KY (16-5): 38.873929, -84.615326
Kennett Square, PA (16-7): 39.846240, -75.711937
Canton, Ohio (16-10): 40.798947, -81.378447
Morrow, Ohio (16-11): 39.354505, -84.127157
Newton Falls, Ohio (16-9): 41.188390, -80.978147
Tipp City, Ohio (16-8): 39.958389, -84.172164
Cypress, Texas (16-14): 29.971691, -95.693786
Killeen, Texas (16-15): 31.117119, -97.727796
Montgomery, Texas (16-17): 30.388261, -95.696335
San Antonio, Texas (16-18): 29.424122, -98.493628
Richardson, Texas (16-19): 32.948333, -96.729852
Conroe, Texas (16-20): 30.311600, -95.469000
Aledo, Texas (16-21): 32.695964, -97.602247
Oak Ridge, Tennessee (16-185): 36.010356, -84.269645
Bartlett, Tennessee (16-22): 35.204533, -89.873975
Spring Hill, Florida (16-23): 28.483651, -82.521450
Franklin, Tennessee (16-25): 35.925064, -86.868890
Estill Springs, Tennessee (16-26): 35.270637, -86.128042
Brownsburg, Indiana (16-27): 39.843377, -86.397774
Chicago, Illinois (16-28): 41.878114, -87.629798
Chicago, Illinois (16-29): 41.865981, -87.645493
Chicago, Illinois (16-30): 41.886880, -87.638369
Glendale Heights, Illinois (16-31): 41.910307, -88.071735
Wellington, Illinois (16-32): 40.539203, -87.680026
Deerfield, Illinois (16-33): 42.171137, -87.844512
Newark, California (16-36): 37.529659, -122.040240
Spring Valley, California (16-38): 32.744774, -116.998916
San Francisco, California (16-39): 37.774930, -122.419416
San Gabriel, California (16-40): 34.096111, -118.105833
Laguna Niguel, California (16-41): 33.522526, -117.707553
Escalon, California (16-42): 37.797427, -120.996603
San Luis Obispo, California (16-43): 35.282752, -120.659616
Aurora, Colorado (16-44): 39.729432, -104.831920
Colorado Springs, Colorado (16-45): 38.833882, -104.821363
Westminster, Colorado (16-46): 39.836653, -105.037205
Grand Lake, Colorado (16-47): 40.252207, -105.823067
San Tan Valley, Arizona (16-48): 33.177294, -111.546830
Casa Grande, Arizona (16-49): 32.879502, -111.757352
Round Rock, Texas (16-51): 30.508260, -97.678900
New Port Richey, Florida (16-52): 28.244177, -82.719267
Venice, Florida (16-53): 27.099777, -82.454263
Davie, Florida (16-54): 26.076478, -80.252116
Ford City, Pennsylvania (16-55): 40.772286, -79.529767
Garnet Valley, Pennsylvania (16-56): 39.858341, -75.469621
Merriam, Kansas (16-63): 39.023617, -94.693570
Courtland, Kansas (16-64): 39.783200, -97.894900
Larose, Louisiana (16-65): 29.572438, -90.381748
Houma, Louisiana (16-66): 29.595770, -90.719535
Houma, Louisiana (16-67): 29.602118, -90.773163
Oploo, Netherlands (16-68): 51.608343, 5.875142
West Monroe, Louisiana (16-69): 32.518478, -92.147635
Metairie, Louisiana (16-70): 29.984092, -90.152852
Ann Arbor, Michigan (16-71): 42.280826, -83.743038
Grosse Pointe Park, Michigan (16-72): 42.375871, -82.937416
Otsego, Minnesota (16-73): 45.274131, -93.591350
Woodbury, Minnesota (16-74): 44.923855, -92.959380
Holts Summit, Missouri (16-75): 38.640315, -92.122406
El Dorado Springs, Missouri (16-76): 37.876980, -94.021330
Springfield, Missouri (16-77): 37.208957, -93.292299
Liberty, Mississippi (16-78): 31.158231, -90.812324
Billings, Montana (16-79): 45.783286, -108.500690
Hager City, Wisconsin (16-80): 44.601634, -92.538246
Tomahawk, Wisconsin (16-81): 45.471079, -89.729859
Spanaway, Washington (16-82): 47.103988, -122.434566
Castor Bay, Auckland, New Zealand (16-83): -36.759729, 174.766163
Brisbane, Australia (16-84): -27.469771, 153.025124
Coffs Harbour, Australia (16-85): -30.298612, 153.109392
Maida Vale, Australia (16-86): -31.953000, 116.023000
Melbourne, Australia (16-87): -37.813611, 144.963056
Fort McMurrary, Canada (16-88): 56.726380, -111.380341
Lively, Canada (16-89): 46.436556, -81.146575
Tupã, Brazil (16-90): -21.934002, -50.519586
Madrid, Spain (16-91): 40.416775, -3.703790
Madrid, Spain (16-92): 40.416633, -3.707800
Barcelona, Spain (16-93): 41.385064, 2.173403
Léguevin, France (16-94): 43.600077, 1.234389
Belgeard, France (16-95): 48.256433, -0.549055
Drachten, Netherlands (16-96): 53.092581, 6.058637
Rotenburg, Germany (16-97): 53.085203, 9.386889
Haslum, Norway (16-98): 59.929360, 10.564245
Wallsend, United Kingdom (16-99): 54.991512, -1.529375
Lee-on-the-Solent, United Kingdom (16-100): 50.802094, -1.202352
Stockport, United Kingdom (16-58): 53.410632, -2.157533
Northampton, United Kingdom (16-101): 52.240477, -0.902656
Leeds, United Kingdom (16-102): 53.800755, -1.549077
Slagelse, Denmark (16-103): 55.403692, 11.355257
Porvoo, Finland (16-13): 60.393192, 25.665274
Greenlawn, New York (16-104): 40.868987, -73.365119
Endwell, New York (16-105): 42.112853, -76.021034
Apalachin, New York (16-106): 42.069519, -76.154650
Westbury, New York (16-107): 40.755656, -73.587627
Nebraska City, Nebraska (16-111): 40.676575, -95.859362
Waimanalo, Hawaii (16-112): 21.346122, -157.721929
Wahiawa, Hawaii (16-113): 21.501050, -158.020923
Remus, Michigan (16-119): 43.596700, -85.144800
Edmonton, Canada (16-120): 53.550140, -113.468710
Antwerp, Belgium (16-121): 51.199993, 4.431101
Wilmington, North Carolina (16-122): 34.209198, -77.871911
Las Cruces, New Mexico (16-123): 32.343430, -106.752401
Smithfield, Utah (16-57): 41.836419, -111.829329
Townsville, Australia (16-35): -19.266390, 146.805690
Pilot Mountain, North Carolina (16-124): 36.387827, -80.471324
Voorhees, New Jersey (16-125): 39.852797, -74.941996
Ireland (16-126): 53.078731, -7.798618
Williamstown, New Jersey (16-127): 39.685959, -74.978604
Riverhead, New York (16-110): 40.949439, -72.710747
Las Vegas, Nevada (16-128): 36.190364, -115.279104
Thomasville, Georgia (16-129): 30.836600, -83.978800
West Jordan, Utah (16-59): 40.609094, -112.007878
Manahawkin, New Jersey (16-130): 39.694034, -74.249740
Kennesaw, Georgia (16-131): 34.030037, -84.617341
Eagle Mountain, Utah (16-61): 40.315099, -112.003867
Carrollton, Georgia (16-132): 33.567300, -85.059400
Danvers, MA (16-133): 42.575947, -70.948756
Agnes Water, Australia (16-134): -24.231948, 151.904501
Las Cruces, New Mexico (16-135): 32.319634, -106.850281
Athol, MA (16-136): 42.581463, -72.216795
Eclectic, Alabama (16-137): 32.635529, -86.031973
Draper, Utah (16-62): 40.495500, -111.860000
Chesterfield, Virginia (16-116): 37.214900, -79.983900
Rillaar, Belgium (16-138): 50.975700, 4.892860
Provo, Utah (16-139): 40.234331, -111.661088
Cremorne, NSW, Australia (16-140): -33.826434, 151.225348
Fowlerville, Michigan (16-141): 42.660590, -84.073010
Menlo Park, California (16-142): 37.499468, -122.143871
Pleasantville, New York (16-143): 41.132900, -73.792600
Forest Hills, NY (16-109): 40.721004, -73.845018
Alphen aan den Rijn, Netherlands (16-144): 52.129170, 4.655460
Tunkhannock, PA (16-145): 41.539679, -75.947456
Charlotte, NC (16-146): 35.227090, -80.843130
St. Johns, Newfoundland, Canada (16-147): 47.561500, -52.712600
Arden, NC (16-148): 35.466111, -82.516389
Clive, Iowa (16-149): 41.607669, -93.797347
Sarnia, Ontario (16-150): 43.024373, -82.316372
Tigard, Oregon (16-151): 45.420900, -122.808000
Canal Fulton, Ohio (16-152): 40.890437, -81.591998
Winchester, Ontario (16-153): 45.091944, -75.352478
Cincinnati, Ohio (16-154): 39.147670, -84.543959
Saint-Georges, Canada (16-156): 46.113530, -70.665260
St. Augustine Florida (16-157): 29.894700, -81.314500
Goondiwindi, Australia (16-158): -28.462210, 150.313450
Fresno, CA (16-160): 36.739400, -119.785000
Lawrerenceville, George (16-161): 33.931900, -83.993300
Ghent, Belgium (16-162): 51.074500, 3.725500
Nolensville, TN (16-164): 35.953600, -86.662000
North Bay, Ontario, CA (16-165): 46.309200, -79.460800
Langhorne, PA (16-166): 40.177700, -74.921200
Libby, MT (16-167): 48.387100, -115.556000
Serra Talhada Pernambuco, Brazil (16-168): -8.035950, -38.369500
Springfield, VA (16-172): 38.789100, -77.187000
Statham, Georgia (16-169): 33.970129, -83.593597
Downers Grove, IL (16-171): 41.794700, -88.017000
Riverview, FL (16-159): 27.871200, -82.327000
Coopersville, MI (16-170): 43.065800, -85.934100
Melbourne, FL (16-173): 28.083600, -80.608100
Melbourne, Australia (16-174): -37.779909, 144.917139
Omaha, NE (16-175): 41.264000, -96.037900
Glendale, AZ (16-50): 33.539000, -112.186000
Worcester, MA (16-176): 42.270600, -71.807800
Sacramento, CA (16-177): 38.565600, -121.468000
Nijmegen, Netherlands (16-178): 51.842700, 5.863470
Montreal, Québec, Canada (16-179): 45.497200, -73.610400
Collierville, TN (16-180): 35.056200, -89.693100
Wincanton, England (16-181): 51.053800, -2.409030
Copenhagen, Denmark (16-182): 55.686700, 12.570100
Berlin, Germany (16-183): 52.519564, 13.379288
Spokane, WA (16-184): 47.667000, -117.433000
Dublin, Ireland (16-186): 53.349800, -6.260270
Watauga, TX (16-187): 32.857900, -97.254700
Derry, N. Ireland (16-188): 54.991900, -7.316800
Stirling, Scotland (16-189): 56.118100, -3.936000
Ellicott City, Maryland (16-190): 39.267300, -76.798300
Nutley, New Jersey (16-191): 40.822300, -74.159900
Reus, Spain (16-192): 41.155600, 1.107610
Barrie, Ontario, Canada (16-193): 44.378800, -79.703100
Saint-Nazaire, France (16-194): 47.279600, -2.209970
Bogotá, Colombia (16-195): 4.598050, -74.076100
Rio de Janeiro, Brazil (16-196): -22.911000, -43.209400
Warsaw, Poland (16-197): 52.231900, 21.006700
Fort Scott, Kansas, USA (16-198): 37.840000, -94.708300
Papillion, Nebraska (16-199): 41.132836, -96.038339
Alma, AR (16-200): 35.476748, -94.225101
Ipswitch, Suffolk, GB (16-201): 52.057900, 1.152630
Atlanta, Georgia (16-202): 33.747751, -84.415512
Greenville, South Carolina (16-203): 34.852692, -82.397461
Harlingen Texas (16-204): 26.190600, -97.696100
Berlin, Germany (16-205): 52.517892, 13.371048
Thief River Falls Minnesota (16-206): 48.124851, -96.177063
Cartagena, Colombia (16-207): 10.414209, -75.498734
Hamden Connecticut (16-208): 41.395900, -72.896900
Pueblo Colorado (16-209): 38.254400, -104.609000
Elizabeth Park South Australia (16-210): -34.712300, 138.685000
Plattsburgh New York (16-211): 44.697945, -73.463516
Elyria Ohio (16-212): 41.368300, -82.106600
Mackay, Australia (16-213): -21.133824, 149.185410
Chandler, Arizona (16-214): 33.306700, -111.841000
Loganville, Georgia (16-215): 33.839000, -83.900700
Poole England (16-216): 50.717900, -1.981520
Bristol England (16-217): 51.467000, -2.601350
Honesdale, Pennsylvania (16-218): 41.576800, -75.258800
Ocala, Florida (16-219): 29.192400, -82.135200
Canton, North Carolina (16-220): 35.532900, -82.837400
Philadelphia, Pennsylvania (16-221): 39.956596, -75.169830
Tyler, Texas (16-222): 32.350963, -95.294724
Pollok Auckland, New Zealand (16-223): -37.137200, 174.616000
Tucson AZ (16-224): 32.221515, -110.998306
Charlotte NC (16-225): 35.216454, -80.833282
Greenbrier Tennessee (16-224): 36.427500, -86.804700
Yarmouth, Maine (16-225): 43.800600, -70.186700
Jacksonville, Florida (16-226): 30.332200, -81.655700
Oak Lawn, IL (16-230): 41.710900, -87.758100
Scarborough, Queensland (16-232): -27.207900, 153.109000
Duluth, MN (16-233): 46.772900, -92.125100
American Falls, ID (16-234): 42.786000, -112.854000
Lancaster, OH (16-235): 39.713700, -82.599300
Dublin, Ireland (16-236): 53.349800, -6.260270
Houston, TX (16-227): 29.763781, -95.350342
Calvados / Normandie, France (16-228): 49.081062, -0.241699
Englewood, OH (16-229): 39.877600, -84.302200
Colchester, CT (16-237): 41.575700, -72.332000
Manchester, GB (16-238): 53.479100, -2.244100
Media, PA (16-239): 39.922771, -75.374279
Smithfield, RI (16-240): 41.924121, -71.547604
Ballarat, Australia (16-241): -37.560364, 143.890686
Solihull, GB (16-242): 52.417079, -1.776009
Kansas City, MO (16-243): 39.108219, -94.531860
Derby, KS (16-244): 37.554921, -97.253723
Ventura, CA (16-245): 34.278300, -119.293000
Haymarket, VA (16-246): 38.816171, -77.632141
Tacoma, WA (16-247): 47.255466, -122.461166
Lacombe, Canada (16-248): 52.474834, -113.725662
Washington DC (16-249): 38.915079, -77.052612
Phoenix, AZ (16-250): 33.405078, -112.152557
Clackamas, OR (16-251): 45.410400, -122.566000
Pompano Beach, FL (16-252): 26.253394, -80.134277
Honolulu, HI (16-253): 21.320721, -157.822037
Greenville, SC (16-254): 34.805911, -82.390594
Saffron Walden England (16-256): 52.023346, 0.251999
Hemet, CA (16-231): 33.717486, -116.953583
El Dorado, CA (16-257): 38.656024, -121.069336
Gillingham, Kent, GB (16-258): 51.386781, 0.556870
Hemet, CA (16-259): 33.734333, -116.962166
Bristol, UK (16-260): 51.451440, -2.574921
Marseille, France (16-261): 43.296574, 5.374718
Tryon, NC (16-262): 35.209020, -82.237730
Orlando, FL (16-263): 28.544719, -81.353760
Ocala, FL (16-264): 29.191132, -82.131042
Denver, CO (16-265): 39.737290, -104.964752
Charlotte, NC (16-266): 35.238890, -80.722046
Copenhagen, Denmark (16-268): 55.674681, 12.572479
Ferndale, WA (16-269): 48.849580, -122.594719
Drachten, Netherlands (16-270): 53.104537, 6.104450
Proserpine, Australia (16-271): -20.375527, 148.590088
Northmead, Australia (16-272): -29.665000, 152.951000
Bethlehem, PA (16-273): 40.620728, -75.374451
Loughborough, GB (16-274): 52.772863, -1.219482
Scarborough, Australia (16-275): -31.896000, 115.759000
Oakley, CA (16-276): 37.997400, -121.712000
La Plata, Buenos Aires (16-277): -34.920845, -57.974167
Lake Oswego, OR (16-278): 45.420700, -122.671000
Udenhout, Netherlands (16-278): 51.611900, 5.140910
Madrid, ESP (16-279): 40.416110, -3.735352
Pineville Louisiana (16-281): 31.326660, -92.430725
Gilbert Arizona (16-282): 33.357488, -111.823654
Inglewood, New Zealand (16-283): -39.158218, 174.212523
Vine Grove Kentucky (16-284): 37.810100, -85.981400
Ferguson Falls Ontario, Canada (16-286): 45.054849, -76.283913
Fontana California (16-287): 34.092200, -117.435000
Lichtenvoorde, The Netherlands (16-288): 51.989100, 6.571690
Tegucigalpa, Honduras (16-289): 14.093200, -87.201300
Hermosa Beach California (16-290): 33.864300, -118.396000
Hope Mills, North Carolina (16-291): 34.970400, -78.945300
Mustang Oklahoma (16-292): 35.384200, -97.724500
Rockville, Maryland (16-293): 39.084000, -77.152800
Kressbronn, Germany (16-294): 47.596600, 9.600330
Jefferson Georgia (16-295): 34.117100, -83.572400
Vancouver, Washington (16-296): 45.634206, -122.652740


Members of the Koolen-de Vries Syndrome Foundation Family can be found all over the world. If you'd like us to add a marker to show where you live, fill out the form below to let us know.

Koolen-de Vries Syndrome Foundation also maintains a confidential database of KdVS families. As of February 2019, we have over 200 families registered. This allows us to help connect new families with others in their geographic area and to maintain a count of diagnosed families. After submission of the form below, you will receive an email about the database. Please check your email and/or spam folder for an email from us!

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