Matt

Twenty-one year old Matt lives in the UK and is diagnosed with Koolen-de Vries Syndrome. He is funny, sensitive and caring with a passion for musical theatre, Xbox and Chelsea football club.

Matt is 21 and lives in Lee on the Solent which is in the UK. He is a funny, sensitive and caring young man with a passion for musical theatre, Xbox and Chelsea football club. Matt and his Dad belong to the local pantomime and variety company where Matt has been learning how to operate the “follow spot” for productions. He hopes to progress to learning the lighting desk.

Young man with KdVS hugging his father

Matt volunteers in our local Oxfam shop one afternoon a week. This placement was set up by college. His class also runs a shop selling sweets and bric a brac at college.

Matt would love to get a job, so we are now aiming for some sort of supported work placement. We’ve also set up some independent travel training so I can let go a little and he can go out independently.

Every day Matt tells me I’m a lovely mother, and that he loves me. It’s been quite a journey, but I couldn’t wish for a better son.