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X-WR-CALDESC:Events for Koolen-de Vries Syndrome Foundation | KDVS
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DTSTART;TZID=America/New_York:20250914T200000
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DTSTAMP:20260608T193434
CREATED:20250904T191556Z
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UID:19575-1757880000-1757883600@kdvsfoundation.org
SUMMARY:KdVSF Connect - Newly Diagnosed Families
DESCRIPTION:Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. \nSunday\, 09/14/2025 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-newly-diagnosed-families-6/
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DTSTART;TZID=America/New_York:20250930T110000
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DTSTAMP:20260608T193434
CREATED:20250921T165121Z
LAST-MODIFIED:20250922T222720Z
UID:19638-1759230000-1759233600@kdvsfoundation.org
SUMMARY:KdVSF Presents: Natural History Study Updates
DESCRIPTION:Join us for a virtual Natural History Study Update meeting on Tuesday\, September 30 at 11am EST.\n\n\n\nHear directly from KdVS experts:\nDr. Nicolo Pini – EEG study updates\nMeagan Hutchinson – additional data and research progress\nDr. Anna Pfalzer – research insights and next steps\n\n\n\nThis event is for all who participated in research at Summit 2025 AND for anyone interested in participating in future research\, you don’t want to miss it!\n\n 
URL:https://kdvsfoundation.org/event/kdvsf-presents-natural-history-study-updates/
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