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  • 2018 “Tri” to be Kool Virtual Triathlon

    ** T-shirts are being ordered 10/2/2018. You are welcome to join our event between 10/2 and 10/17, but unfortunately, we can not guarantee extra t-shirts will be available.** Join Koolen-de Vries Syndrome Foundation in our 2018 “Tri” to be Kool Virtual Triathlon! This is our third annual Triathlon and this year all proceeds from the […]

    $40.00

  • KdVS 2019 Summit Event Page Cover Photo

    2019 KdVS Patient Advocacy Summit

    Newpark Resort, Park City, Utah 1476 Newpark Boulevard, Park City, UT, United States

    We are pleased to present the 2019 KdVS Patient Advocacy Summit in Park City, Utah on June 27-29, 2019. Learn from top scientists, meet other families and Kool kids and enjoy the beautiful Utah mountains!

    Free – $50