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X-WR-CALNAME:Koolen-de Vries Syndrome Foundation | KDVS
X-ORIGINAL-URL:https://kdvsfoundation.org
X-WR-CALDESC:Events for Koolen-de Vries Syndrome Foundation | KDVS
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TZID:America/Detroit
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20240121T200000
DTEND;TZID=America/Detroit:20240121T210000
DTSTAMP:20260608T184412
CREATED:20230928T170238Z
LAST-MODIFIED:20240118T164802Z
UID:17586-1705867200-1705870800@kdvsfoundation.org
SUMMARY:KdVSF Connect - Caregiver Emotional Support
DESCRIPTION:Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. \nSunday\, 1/21/2024 at 8 pm EST\nThursday\, 4/11/2024 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-caregiver-emotional-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231105T200000
DTEND;TZID=America/Detroit:20231105T210000
DTSTAMP:20260608T184412
CREATED:20230928T171513Z
LAST-MODIFIED:20231026T154755Z
UID:17590-1699214400-1699218000@kdvsfoundation.org
SUMMARY:KdVSF Connect - Newly Diagnosed Families
DESCRIPTION:Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. \nSunday\, 11/5/2023 at 8 pm EST\nTuesday\, 3/12/2024 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-newly-diagnosed-families/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231022T200000
DTEND;TZID=America/Detroit:20231022T210000
DTSTAMP:20260608T184412
CREATED:20230928T165527Z
LAST-MODIFIED:20230928T165527Z
UID:17580-1698004800-1698008400@kdvsfoundation.org
SUMMARY:KdVSF Connect - Meet & Greet
DESCRIPTION:Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you!  \nSunday\, 10/22/2023 at 8 pm EST\nThursday\, 2/3/2024 at 8 pm EST\nSaturday\, 5/18/2024 at 12 pm EST \nZoom link coming soon.
URL:https://kdvsfoundation.org/event/kdvsf-connect-meet-greet/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230611T200000
DTEND;TZID=America/Detroit:20230611T203000
DTSTAMP:20260608T184412
CREATED:20220921T164847Z
LAST-MODIFIED:20221027T160522Z
UID:16908-1686513600-1686515400@kdvsfoundation.org
SUMMARY:KdVSF Connect - Summit Discussion
DESCRIPTION:Are you attending the Koolen-de Vries Syndrome Foundation’s Patient Advocacy Summit? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions!   The event takes place June 11\, 2023 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your timezone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-summit-discussion-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230610T120000
DTEND;TZID=America/Detroit:20230610T123000
DTSTAMP:20260608T184412
CREATED:20220921T164352Z
LAST-MODIFIED:20221027T160623Z
UID:16906-1686398400-1686400200@kdvsfoundation.org
SUMMARY:KdVSF Connect - Summit Discussion
DESCRIPTION:Are you attending the Koolen-de Vries Syndrome Foundation’s Patient Advocacy Summit? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions!   The event takes place June 10\, 2023 at 12 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-summit-discussion/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230521T200000
DTEND;TZID=America/Detroit:20230521T210000
DTSTAMP:20260608T184412
CREATED:20220921T163251Z
LAST-MODIFIED:20221027T160351Z
UID:16904-1684699200-1684702800@kdvsfoundation.org
SUMMARY:KdVSF Connect - Verbal Speech Challenges
DESCRIPTION:Join the KdVSF Foundation to discuss Koolen-de Vries Syndrome and speech challenges. The event takes place May 21\, 2023 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-verbal-speech-challenges/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230423T200000
DTEND;TZID=America/Detroit:20230423T210000
DTSTAMP:20260608T184412
CREATED:20220921T162603Z
LAST-MODIFIED:20221027T160300Z
UID:16897-1682280000-1682283600@kdvsfoundation.org
SUMMARY:KdVSF Connect - Kool Family Meet & Greet
DESCRIPTION:Join the KdVS Foundation for a casual Meet & Greet virtual event! Kool individuals of all ages and their families are welcome to attend! The event takes place April 23\, 2023 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-kool-family-meet-greet-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230311T120000
DTEND;TZID=America/Detroit:20230311T130000
DTSTAMP:20260608T184412
CREATED:20220921T162215Z
LAST-MODIFIED:20221027T155314Z
UID:16895-1678536000-1678539600@kdvsfoundation.org
SUMMARY:KdVSF Connect - Emotional Support Group
DESCRIPTION:Join the KdVS Foundation for the virtual Emotional Support Group. This support group is for KdVS Caregivers. The event takes place March 11\, 2023 at 12 pm EASTERN TIME. Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-emotional-support-group-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230213T190000
DTEND;TZID=America/Detroit:20230213T190000
DTSTAMP:20260608T184412
CREATED:20230131T162329Z
LAST-MODIFIED:20230131T162329Z
UID:17151-1676314800-1676314800@kdvsfoundation.org
SUMMARY:GI Issues in the DEEs
DESCRIPTION:Come learn about GI issues such as reflux\, feeding tubes\, constipation\, and more from pediatric GI doctor and Koolen-de Vries Syndrome dad Russ Zwiener. The discussion will be led by Kaci Fisher\, a Koolen-de Vries Syndrome Foundation Board member and KdVS mom. This webinar is being co-hosted with DEE-P Connections. DEE-P Connections is dedicated to sharing resources with families caring for loved ones with severe epilepsy. \nRegister at: https://us02web.zoom.us/…/reg…/WN_FlYIyxvcTaSLUkYqfdUKGg
URL:https://kdvsfoundation.org/event/gi-issues-in-the-dees/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230205T200000
DTEND;TZID=America/Detroit:20230205T204500
DTSTAMP:20260608T184412
CREATED:20220921T161319Z
LAST-MODIFIED:20221027T160103Z
UID:16891-1675627200-1675629900@kdvsfoundation.org
SUMMARY:KdVSF Connect - NEW Emotional Support Group Series
DESCRIPTION:We are trying something NEW! In the past\, the KdVSF Connect Emotional Support group meetings have been very popular. This February\, we are offering a small group series of emotional support group meetings. This group will meet four times in the month of February and we ask attendees to commit to attend 3 of the 4 group meetings. \nThe emotional support group meetings will be held on February 5\, 12\, 19 and 26 at 8 pm EASTERN. Not sure what time that is for you? Check your time zone HERE!  Each session will be 45 minutes. \nThis series of virtual meetings will offer a small group (limit of 10 individuals) the chance to take a deeper dive into grief\, hardships\, anxiety\, sadness and fears associated with raising an individual with Koolen-de Vries Syndrome. \nDon’t forget to register! Registering once will register you for all 4 days!
URL:https://kdvsfoundation.org/event/kdvs-connect-new-emotional-support-group-series/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230107T120000
DTEND;TZID=America/Detroit:20230107T130000
DTSTAMP:20260608T184412
CREATED:20220921T160410Z
LAST-MODIFIED:20221027T155913Z
UID:16889-1673092800-1673096400@kdvsfoundation.org
SUMMARY:KdVSF Connect - Kool Family Meet & Greet
DESCRIPTION:Join the KdVS Foundation for a casual Meet & Greet virtual event! Kool individuals of all ages and their families are welcome to attend! The event takes place January 7\, 2023 at 12 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-kool-family-meet-greet/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20221212T200000
DTEND;TZID=America/Detroit:20221212T210000
DTSTAMP:20260608T184412
CREATED:20221205T003328Z
LAST-MODIFIED:20221205T003816Z
UID:17053-1670875200-1670878800@kdvsfoundation.org
SUMMARY:Introduction to Help\, Hope\, Live
DESCRIPTION:The KdVS Foundation is proud to partner with Help Hope Live\, a trusted medical fundraising nonprofit that supports the rare disease community across the country. Don’t take on out-of-pocket medical expenses alone: trust the nonprofit fundraising experts\, and access benefits from one-on-one fundraising help to tax-deductible donations for donors to fundraising that won’t jeopardize your benefits.\n\n\n\nClick here to join the virtual meeting on December 12\, 2022 at 8PM ET!
URL:https://kdvsfoundation.org/event/introduction-to-help-hope-live/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20221210T120000
DTEND;TZID=America/Detroit:20221210T130000
DTSTAMP:20260608T184412
CREATED:20220921T160118Z
LAST-MODIFIED:20221027T155548Z
UID:16887-1670673600-1670677200@kdvsfoundation.org
SUMMARY:KdVSF Connect - Newly Diagnosed Meet & Greet
DESCRIPTION:Join the KdVS Foundation for a virtual Meet & Greet for newly diagnosed families (diagnosis within the last two years). The event takes place Saturday\, December 10\, 2022 at 12 pm EASTERN TIME. Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-newly-diagnosed-meet-greet/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20221113T200000
DTEND;TZID=America/Detroit:20221113T210000
DTSTAMP:20260608T184412
CREATED:20220921T161741Z
LAST-MODIFIED:20221027T155447Z
UID:16893-1668369600-1668373200@kdvsfoundation.org
SUMMARY:KdVSF Connect - Epilepsy Discussion and Support
DESCRIPTION:In honor of Epilepsy Awareness Month\, this month’s KdVS Connect revolves around all things KdVS and Epilepsy. This virtual support group is open to anyone interested in the topic and it takes places on Sunday\, November 13\, 2022 at 8 pm EASTERN. Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-epilepsy-discussion-and-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20221023T200000
DTEND;TZID=America/Detroit:20221023T200000
DTSTAMP:20260608T184412
CREATED:20220920T132808Z
LAST-MODIFIED:20220921T165913Z
UID:16880-1666555200-1666555200@kdvsfoundation.org
SUMMARY:KdVSF Connect - Emotional Support Group
DESCRIPTION:Join the KdVS Foundation for the virtual Emotional Support Group. This support group is for KdVS Caregivers. The event takes place October 23\, 2022 at 8 pm EASTERN TIME. Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-emotional-support-group-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20221001T120000
DTEND;TZID=America/Detroit:20221001T130000
DTSTAMP:20260608T184412
CREATED:20220920T132311Z
LAST-MODIFIED:20220921T170002Z
UID:16878-1664625600-1664629200@kdvsfoundation.org
SUMMARY:KdVSF Connect - Kool Family Meet & Greet
DESCRIPTION:Join the KdVS Foundation for a casual Meet & Greet virtual event! Kool individuals of all ages and their families are welcome to attend! The event takes place October 1\, 2022 at 12 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-meet-greet-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220925T200000
DTEND;TZID=America/Detroit:20220925T210000
DTSTAMP:20260608T184412
CREATED:20220920T131916Z
LAST-MODIFIED:20220922T181718Z
UID:16875-1664136000-1664139600@kdvsfoundation.org
SUMMARY:KdVSF Connect - Kool Family Meet & Greet
DESCRIPTION:Join the KdVS Foundation for a casual Meet & Greet virtual event! Kool individuals of all ages and their families are welcome to attend! The event takes place September 25\, 2022 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! \nKdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest\, to receive support and to make new friends. We would love to have you join us! \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-meet-greet/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220727T140000
DTEND;TZID=America/Detroit:20220727T150000
DTSTAMP:20260608T184412
CREATED:20220425T172149Z
LAST-MODIFIED:20220725T193717Z
UID:16295-1658930400-1658934000@kdvsfoundation.org
SUMMARY:Webinar with Brooke Latour\, KdVS Fellow
DESCRIPTION:Join the Koolen-de Vries Syndrome Foundation and KdVS Fellow Brooke Latour for an update on her past year of research. \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/webinar-with-brooke-latour-kdvs-fellow/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220623T200000
DTEND;TZID=America/Detroit:20220623T200000
DTSTAMP:20260608T184412
CREATED:20220602T174847Z
LAST-MODIFIED:20220602T174847Z
UID:16499-1656014400-1656014400@kdvsfoundation.org
SUMMARY:RARE-X Introduction
DESCRIPTION:Join Koolen-de Vries Syndrome Foundation and Megan O’Boyle of RARE-X for an introduction to the RARE-X platform. We are very excited about the launch of the KdVS Data Collection Program (DCP). When families contribute data\, researchers\, doctors and our community can understand more about Koolen-de Vries Syndrome and develop better treatments. \nThis webinar will be held on June 23\, 2022 at 8 pm ET. It will be recorded and shared across social media so families can view it at their convenience. \nParticipants in RARE-X can enroll from ANY country; however\, they will need to be able to understand English. Translations for 3-5 additional languages are expected within the next year. \nDon’t forget to register and submit any questions you might have!
URL:https://kdvsfoundation.org/event/rare-x-introduction/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220614T180000
DTEND;TZID=America/Detroit:20220614T190000
DTSTAMP:20260608T184412
CREATED:20220322T125535Z
LAST-MODIFIED:20220322T125622Z
UID:16197-1655229600-1655233200@kdvsfoundation.org
SUMMARY:Webinar with Bea Moise\, A Child Like Mine
DESCRIPTION:Join KdVS Foundation’s Kaci Fisher on June 14\, 2022 at 6 pm ET as she speaks with Bea Moise about the siblings of special needs individuals. The first half of the webinar Bea Moise will discuss a sibling’s perspective and the second half will be open for questions and discussions. \nBeatrice (Bea) Moise\, M.S.\, BCCS\, is a Board-Certified Cognitive Specialist\, Parenting Coach\, Author and National Speaker. She created A Child Like Mine to educate parents of children with unique atypical brains that have both behavior and learning needs\, while giving them the tools they need to be successful at home. \nRead more about Bea Moise at A Child Like Mine. \nRegistration information coming soon. \n  \n 
URL:https://kdvsfoundation.org/event/webinar-with-bea-moise-a-child-like-mine/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220604T130000
DTEND;TZID=America/Detroit:20220604T140000
DTSTAMP:20260608T184412
CREATED:20220408T024918Z
LAST-MODIFIED:20220524T023534Z
UID:16215-1654347600-1654351200@kdvsfoundation.org
SUMMARY:It Takes a Village - 5th thru 12th Grade IEPs
DESCRIPTION:Koolen-de Vries Syndrome Foundation\, iDefine and SETBP1 Society are excited to form a partnership called “It Takes a Village”. Through this partnership\, our wonderful communities will have the chance to share resources and join informative webinars that apply to our populations. \nThis webinar is for families with children in 5th grade through 12th grade. Join KdVS Foundation’s Kaci Fisher on June 4\, 2022 at 1 pm ET as she speaks with two experts in Individualized Education Plans (IEP) for middle and high school age children. \nPlease be sure to register!
URL:https://kdvsfoundation.org/event/it-takes-a-village-5th-thru-12th-grade-ieps/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220522T200000
DTEND;TZID=America/Detroit:20220522T200000
DTSTAMP:20260608T184412
CREATED:20211216T185040Z
LAST-MODIFIED:20220111T042944Z
UID:15421-1653249600-1653249600@kdvsfoundation.org
SUMMARY:KdVS Connect - Navigating Kool Kid Participation
DESCRIPTION:Join the Koolen-de Vries Syndrome Foundation for a virtual support group on May 22\, 2022 at 8 pm ET. Discussion will revolve around navigating Kool Kid participation with neuro-typical groups in school\, sports and making friends.  Don’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-navigating-kool-kid-participation/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220507T140000
DTEND;TZID=America/Detroit:20220507T150000
DTSTAMP:20260608T184412
CREATED:20220408T024548Z
LAST-MODIFIED:20220502T155232Z
UID:16210-1651932000-1651935600@kdvsfoundation.org
SUMMARY:It Takes a Village - IEPs PreK thru 4th Grade
DESCRIPTION:Koolen-de Vries Syndrome Foundation\, IDefine and SETBP1 Society are excited to form a partnership called “It Takes a Village”. Through this partnership\, our wonderful communities will have the chance to share resources and join informative webinars that apply to our populations. \nThe first webinar is for families with children in PreK thru 4th grade. Join KdVS Foundation’s Kaci Fisher as she speaks with Kelly Rhyne (IDefine)\, an expert in Individualized Education Plans (IEP) for young school age children. \n 
URL:https://kdvsfoundation.org/event/it-takes-a-village-ieps-prek-thru-4th-grade/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220428T130000
DTEND;TZID=America/Detroit:20220428T140000
DTSTAMP:20260608T184412
CREATED:20220418T143622Z
LAST-MODIFIED:20220418T143724Z
UID:16263-1651150800-1651154400@kdvsfoundation.org
SUMMARY:Webinar with Dr. Katie Pecheck
DESCRIPTION:Join the KdVS Foundation for a conversation with Kool Mom and dentist\, Dr. Katie Pecheck. Register and submit your dental questions here. \n  \nAfter registering\, you will receive a confirmation email containing information about joining the webinar.
URL:https://kdvsfoundation.org/event/webinar-with-dr-katie-pecheck/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220409T120000
DTEND;TZID=America/Detroit:20220409T130000
DTSTAMP:20260608T184412
CREATED:20211216T184652Z
LAST-MODIFIED:20220111T042849Z
UID:15419-1649505600-1649509200@kdvsfoundation.org
SUMMARY:KdVS Connect - Verbal Speech Discussion
DESCRIPTION:Join the Koolen-de Vries Syndrome Foundation for a virtual KdVS Connect zoom call. On April 9\, 2022 at 12 pm ET\, attendees will have the chance to discuss all things related to speech. What works or has worked for your Kool Kid? How has communication changed or improved with age? Don’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-verbal-speech-discussion/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220313T200000
DTEND;TZID=America/Detroit:20220313T200000
DTSTAMP:20260608T184412
CREATED:20211216T184100Z
LAST-MODIFIED:20220111T042720Z
UID:15414-1647201600-1647201600@kdvsfoundation.org
SUMMARY:KdVS Connect - Young Adults & Parents
DESCRIPTION:Join Koolen-de Vries Syndrome Foundation for a virtual Zoom event. March 13\, 2022 at 8 pm ET – KdVS young adults and their parents are invited to discuss transitions to adulthood and independent living. Don’t forget to register!
URL:https://kdvsfoundation.org/event/kdvs-connect-young-adults-parents/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220212T120000
DTEND;TZID=America/Detroit:20220212T130000
DTSTAMP:20260608T184412
CREATED:20211028T235542Z
LAST-MODIFIED:20211216T184307Z
UID:13736-1644667200-1644670800@kdvsfoundation.org
SUMMARY:KdVS Connect - Regional Groups
DESCRIPTION:Join us for KdVS Connect on February 12\, 2022 at 12 pm ET. This month’s theme is connection within your geographic region. Registration link below – make sure you tell us where you are joining our Zoom call from (Europe\, Australia/New Zealand\, Central/South America\, Africa\, Asia\, or if inside the USA\, please specify general region).
URL:https://kdvsfoundation.org/event/kdvs-connect-regional-groups/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220209T180000
DTEND;TZID=America/Detroit:20220209T190000
DTSTAMP:20260608T184412
CREATED:20220131T212722Z
LAST-MODIFIED:20220131T212722Z
UID:16011-1644429600-1644433200@kdvsfoundation.org
SUMMARY:Webinar - Speech Tracker Study
DESCRIPTION:Join us on February 9th\, 2022 at 6 pm ET for a conversation with Prof. Angela Morgan and her PhD student\, Olivia Van Reyk! They will be providing updates on their Speech Tracker study that builds on their previous research showing that speech and language is a core developmental challenge for children with Koolen-de Vries Syndrome. The data gathered helps researchers better understand prognosis and aids with developing more targeted speech therapies. \nDon’t forget to register!
URL:https://kdvsfoundation.org/event/webinar-speech-tracker-study/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20220116T200000
DTEND;TZID=America/Detroit:20220116T200000
DTSTAMP:20260608T184412
CREATED:20211216T182751Z
LAST-MODIFIED:20220111T042139Z
UID:15404-1642363200-1642363200@kdvsfoundation.org
SUMMARY:KdVS Connect - Emotional Support Group
DESCRIPTION:Join us on Zoom January 16\, 2022 at 8 pm ET for an Emotional support group for KdVS parents/caregivers. What’s been the most difficult part about being a KdVS parent? How do you cope?
URL:https://kdvsfoundation.org/event/kdvs-connect-emotional-support-group-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20211212T110000
DTEND;TZID=America/Detroit:20211212T120000
DTSTAMP:20260608T184412
CREATED:20211119T162537Z
LAST-MODIFIED:20211130T200519Z
UID:14265-1639306800-1639310400@kdvsfoundation.org
SUMMARY:Pediatric Ophthalmology Webinar
DESCRIPTION:Dr. Daphna Landau is an orbital and oculoplastic surgeon at the Goldschleger Eye Institute\, Sheba Medical Center\, Israel\, and a research affiliate at the division of Ophthalmology\, Children’s Hospital of Philadelphia (CHOP). She has an MD degree from Tel Aviv University and a BSc in Mathematics with Computer Science from the Technion – Israel Institute of Technology (cum laude on both). She is a graduate of the Rothschild Scholars Program\, the Technion Program for Excellence\, and won several prizes and scholarships for academic and clinical excellence. Dr. Landau was trained in oculoplastic surgery at CHOP. She participated in several international humanitarian delegations to tribal areas\, performing oculoplastic surgeries. Dr. Landau is an associate editor of Atlas of Orbital Imaging under Springer publications\, a collaborative work of world leaders in orbital surgery and imaging\, and is leading various academic and innovative projects. \nDr. Sharon Blum Meirovitch completed both her BSc degree in Medical Science and MD degree in Tel Aviv University\, Israel (Cum Laude in both). Between 2014-2019 she trained in ophthalmology at the Goldschleger Eye Institute\, Sheba Medical Center\, Israel\, after which she specialized in paediatric opthalmology and strabismus at the Tel Aviv Medical Center\, Israel. She is now part of the International Paediatric & Strabismus fellowship program at Moorfields Eye Hospital\, London\, UK. Dr. Blum Meirovitch won several scholarships for academic excellence and published numerous papers in the peer-reviewed literature.
URL:https://kdvsfoundation.org/event/pediatric-ophthalmology-webinar/
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