KdVSF Connect – Newly Diagnosed Families
Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, […]
10 events found.
Events
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KdVSF Connect – Caregiver Emotional Support
Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 11/10/2024 […]
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KdVSF Connect – Kool Meet Up
Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]
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KdVSF Connect – Newly Diagnosed Families
Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, […]
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KdVSF Connect – Caregiver Emotional Support
Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 03/09/2025 […]
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KdVSF Connect – Kool Meet Up
Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]
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KdVSF Connect – Newly Diagnosed Families
Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, […]
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Summit Registration Chat
Join our chat from 7:00-8:00pm EST to chat about Registration for KdVSF Summit 2025!
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Chicago Concierge
Join our KdVS Chicago-based family, The Mahers, on May 26th at 6PM CST virtually for a deep dive on Chicago must-sees while you’re at the summit this summer. From incredible […]
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KdVSF Connect – Get Excited for Summit!
Are you attending the Koolen-de Vries Syndrome Foundation's Patient Advocacy Summit in Chicago? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions! The event […]
