• KdVSF Connect – Meet & Greet

    Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

  • CSO Chat with Researcher Dr. Yann Herault

    Join Koolen de Vries Syndrome Foundation's Chief Scientific Officer Dr. Anna Pfalzer for a zoom webinar with Dr. Yann Herault. The webinar will be held May 30, 2024 at 11 […]

  • CSO Research Chat with genetic counselor

    Join us Thursday 6/27/24 for a Research Chat with KdVSF Chief Scientific Officer Dr. Anna Pfalzer and Adalyn Kim, a genetic counselor student at Medical College of Wisconsin. This chat […]

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, […]

  • KdVSF Connect – Caregiver Emotional Support

    Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 11/10/2024 […]

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, […]

  • KdVSF Connect – Caregiver Emotional Support

    Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 03/09/2025 […]

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]