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X-WR-CALNAME:Koolen-de Vries Syndrome Foundation | KDVS
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X-WR-CALDESC:Events for Koolen-de Vries Syndrome Foundation | KDVS
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DTSTART;TZID=America/Detroit:20260504T190000
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UID:20518-1777921200-1777924800@kdvsfoundation.org
SUMMARY:Summit Planning Committee Meeting
DESCRIPTION:Join Summit Co-Chairs Katie Maher & Tony Pechek to dive into the feedback we received from the 2025 KdVSF PAS. Once we analyze and discuss what participants had to say\, then we’ll begin making some decisions about what we’ll carry into this next summit in Colorado. \nWe’ll also begin delegating tasks and responsibilities to our lovely summit committee. If there’s anything in particular that you’d like to be the point person for\, please come to the meeting with that information! \nIf you are unable to attend\, but would still like to be involved in the process\, please send an email to summit@supportingkdvs.org. \n 
URL:https://kdvsfoundation.org/event/summit-committee-meeting/
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DTSTART;TZID=America/New_York:20260517T200000
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LAST-MODIFIED:20260331T190506Z
UID:20437-1779048000-1779051600@kdvsfoundation.org
SUMMARY:KdVSF Connect - Newly Diagnosed Families
DESCRIPTION:Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. \nSunday\, 05/17/2026 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-newly-diagnosed-families-8/
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