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PRODID:-//Koolen-de Vries Syndrome Foundation | KDVS - ECPv6.15.18//NONSGML v1.0//EN
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X-WR-CALNAME:Koolen-de Vries Syndrome Foundation | KDVS
X-ORIGINAL-URL:https://kdvsfoundation.org
X-WR-CALDESC:Events for Koolen-de Vries Syndrome Foundation | KDVS
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260422
DTEND;VALUE=DATE:20260423
DTSTAMP:20260701T122628
CREATED:20260331T191824Z
LAST-MODIFIED:20260331T191824Z
UID:20440-1776816000-1776902399@kdvsfoundation.org
SUMMARY:KdVSF Presents: Kool Klinic\, Grand Opening Day!
DESCRIPTION:A day to celebrate our first-ever Kool Klinic officially opening! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kdvsf-presents-kool-klinic-grand-opening-day/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260504T190000
DTEND;TZID=America/Detroit:20260504T200000
DTSTAMP:20260701T122628
CREATED:20260428T151434Z
LAST-MODIFIED:20260428T151917Z
UID:20518-1777921200-1777924800@kdvsfoundation.org
SUMMARY:Summit Planning Committee Meeting
DESCRIPTION:Join Summit Co-Chairs Katie Maher & Tony Pechek to dive into the feedback we received from the 2025 KdVSF PAS. Once we analyze and discuss what participants had to say\, then we’ll begin making some decisions about what we’ll carry into this next summit in Colorado. \nWe’ll also begin delegating tasks and responsibilities to our lovely summit committee. If there’s anything in particular that you’d like to be the point person for\, please come to the meeting with that information! \nIf you are unable to attend\, but would still like to be involved in the process\, please send an email to summit@supportingkdvs.org. \n 
URL:https://kdvsfoundation.org/event/summit-committee-meeting/
LOCATION:CO
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T200000
DTEND;TZID=America/New_York:20260517T210000
DTSTAMP:20260701T122628
CREATED:20260331T190347Z
LAST-MODIFIED:20260331T190506Z
UID:20437-1779048000-1779051600@kdvsfoundation.org
SUMMARY:KdVSF Connect - Newly Diagnosed Families
DESCRIPTION:Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. \nSunday\, 05/17/2026 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-newly-diagnosed-families-8/
LOCATION:CO
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260622T080000
DTEND;TZID=America/Detroit:20260622T170000
DTSTAMP:20260701T122628
CREATED:20260622T185824Z
LAST-MODIFIED:20260622T191156Z
UID:20588-1782115200-1782147600@kdvsfoundation.org
SUMMARY:Kool Klinic Patient Day!
DESCRIPTION:Our official second patient day for Kool Klinic! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kool-klinic-patient-day/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260717
DTEND;VALUE=DATE:20260718
DTSTAMP:20260701T122628
CREATED:20260622T190658Z
LAST-MODIFIED:20260622T190658Z
UID:20592-1784246400-1784332799@kdvsfoundation.org
SUMMARY:KdVS Day 2026!
DESCRIPTION:Koolen-de Vries Syndrome Awareness Day is observed annually on July 17. The goal is to raise awareness for Koolen-de Vries Syndrome (KdVS) and to bring people together across the globe to show support for those who are impacted by this rare genetic syndrome. Why the 17th? Because the microdeletion or the KANSL1 mutation is located on the chromosome 17. \nLearn more about KdVS Day and some fundraising ideas HERE.
URL:https://kdvsfoundation.org/event/kdvs-day-2026/
LOCATION:CO
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260722T080000
DTEND;TZID=America/Detroit:20260722T170000
DTSTAMP:20260701T122628
CREATED:20260622T190421Z
LAST-MODIFIED:20260622T191114Z
UID:20590-1784707200-1784739600@kdvsfoundation.org
SUMMARY:Kool Klinic Patient Day!
DESCRIPTION:Our official third patient day for Kool Klinic! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kool-klinic-patient-day-2/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260923T080000
DTEND;TZID=America/Detroit:20260923T170000
DTSTAMP:20260701T122628
CREATED:20260622T190945Z
LAST-MODIFIED:20260622T190945Z
UID:20594-1790150400-1790182800@kdvsfoundation.org
SUMMARY:Kool Klinic Patient Day!
DESCRIPTION:Our official fourth patient day for Kool Klinic! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kool-klinic-patient-day-3/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20261028T080000
DTEND;TZID=America/Detroit:20261028T170000
DTSTAMP:20260701T122628
CREATED:20260622T191329Z
LAST-MODIFIED:20260622T191329Z
UID:20596-1793174400-1793206800@kdvsfoundation.org
SUMMARY:Kool Klinic Patient Day!
DESCRIPTION:Our official fourth patient day for Kool Klinic! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kool-klinic-patient-day-4/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
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