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PRODID:-//Koolen-de Vries Syndrome Foundation | KDVS - ECPv6.15.18//NONSGML v1.0//EN
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X-WR-CALNAME:Koolen-de Vries Syndrome Foundation | KDVS
X-ORIGINAL-URL:https://kdvsfoundation.org
X-WR-CALDESC:Events for Koolen-de Vries Syndrome Foundation | KDVS
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260208T200000
DTEND;TZID=America/Detroit:20260208T210000
DTSTAMP:20260608T171947
CREATED:20250904T192842Z
LAST-MODIFIED:20250904T192842Z
UID:19584-1770580800-1770584400@kdvsfoundation.org
SUMMARY:KdVSF Connect - All About Speech
DESCRIPTION:Join the KdVS Foundation for a meeting all about speech\, open to any KdVS families! We look forward to connecting and supporting you. \nSunday\, 02/08/2026 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-all-about-speech/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260308T200000
DTEND;TZID=America/Detroit:20260308T200000
DTSTAMP:20260608T171947
CREATED:20250904T193136Z
LAST-MODIFIED:20260307T230028Z
UID:19586-1773000000-1773000000@kdvsfoundation.org
SUMMARY:KdVSF Connect - Caregiver Emotional Support and Chat
DESCRIPTION:Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. \nSunday\, 03/08/2026 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-caregiver-emotional-support-and-chat-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260316T200000
DTEND;TZID=America/New_York:20260316T210000
DTSTAMP:20260608T171947
CREATED:20260307T231018Z
LAST-MODIFIED:20260312T184833Z
UID:20398-1773691200-1773694800@kdvsfoundation.org
SUMMARY:FIRST Summit 2027 Planning Session!
DESCRIPTION:Join Summit Co-Chairs Katie Maher & Tony Pechek for a brief informational meeting about how you can get involved in making the 2027 KdVSF PAS in Denver the biggest and best summit yet! We’ll be discussing meeting cadence over the next 17 months\, tasks\, and we’ll be collecting ideas and thoughts from our summit committee members. \nIf you are unable to attend this time around\, but would still like to be involved in the process\, have no fear\, there will be more opportunities to join!
URL:https://kdvsfoundation.org/event/first-summit-2027-planning-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260412T200000
DTEND;TZID=America/Detroit:20260412T200000
DTSTAMP:20260608T171947
CREATED:20250904T193418Z
LAST-MODIFIED:20260307T230055Z
UID:19588-1776024000-1776024000@kdvsfoundation.org
SUMMARY:KdVSF Connect - All About Puberty
DESCRIPTION:Join the KdVS Foundation for a meeting all about puberty\, open to KdVS families looking for information or to provide support to others! We look forward to connecting and supporting you. \nSunday\, 04/12/2026 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-all-about-puberty/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260422
DTEND;VALUE=DATE:20260423
DTSTAMP:20260608T171947
CREATED:20260331T191824Z
LAST-MODIFIED:20260331T191824Z
UID:20440-1776816000-1776902399@kdvsfoundation.org
SUMMARY:KdVSF Presents: Kool Klinic\, Grand Opening Day!
DESCRIPTION:A day to celebrate our first-ever Kool Klinic officially opening! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kdvsf-presents-kool-klinic-grand-opening-day/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260504T190000
DTEND;TZID=America/Detroit:20260504T200000
DTSTAMP:20260608T171947
CREATED:20260428T151434Z
LAST-MODIFIED:20260428T151917Z
UID:20518-1777921200-1777924800@kdvsfoundation.org
SUMMARY:Summit Planning Committee Meeting
DESCRIPTION:Join Summit Co-Chairs Katie Maher & Tony Pechek to dive into the feedback we received from the 2025 KdVSF PAS. Once we analyze and discuss what participants had to say\, then we’ll begin making some decisions about what we’ll carry into this next summit in Colorado. \nWe’ll also begin delegating tasks and responsibilities to our lovely summit committee. If there’s anything in particular that you’d like to be the point person for\, please come to the meeting with that information! \nIf you are unable to attend\, but would still like to be involved in the process\, please send an email to summit@supportingkdvs.org. \n 
URL:https://kdvsfoundation.org/event/summit-committee-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T200000
DTEND;TZID=America/New_York:20260517T210000
DTSTAMP:20260608T171947
CREATED:20260331T190347Z
LAST-MODIFIED:20260331T190506Z
UID:20437-1779048000-1779051600@kdvsfoundation.org
SUMMARY:KdVSF Connect - Newly Diagnosed Families
DESCRIPTION:Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. \nSunday\, 05/17/2026 at 8 pm EST
URL:https://kdvsfoundation.org/event/kdvsf-connect-newly-diagnosed-families-8/
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