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X-ORIGINAL-URL:https://kdvsfoundation.org
X-WR-CALDESC:Events for Koolen-de Vries Syndrome Foundation | KDVS
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DTSTART;VALUE=DATE:20260717
DTEND;VALUE=DATE:20260718
DTSTAMP:20260630T195201
CREATED:20260622T190658Z
LAST-MODIFIED:20260622T190658Z
UID:20592-1784246400-1784332799@kdvsfoundation.org
SUMMARY:KdVS Day 2026!
DESCRIPTION:Koolen-de Vries Syndrome Awareness Day is observed annually on July 17. The goal is to raise awareness for Koolen-de Vries Syndrome (KdVS) and to bring people together across the globe to show support for those who are impacted by this rare genetic syndrome. Why the 17th? Because the microdeletion or the KANSL1 mutation is located on the chromosome 17. \nLearn more about KdVS Day and some fundraising ideas HERE.
URL:https://kdvsfoundation.org/event/kdvs-day-2026/
LOCATION:CO
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